Bibliography

About ME/CFS. National Institutes of Health (NIH). Published January 6, 2016. https://www.nih.gov/mecfs/about-mecfs

About Social Security. Social Security Administration. https://www.ssa.gov/agency

About the Disease. Solve ME/CFS Initiative. https://solvecfs.org/me-cfs-long-covid/about-the-disease

American Medical Association. Akiko Iwasaki, PhD, on the latest long COVID research | COVID-19 Update. YouTube. Published April 11, 2022. https://www.youtube.com/watch?v=lle9Tfhhfl4&t=1s

An Overview of Post-viral Syndrome. Southern Medical Association. Published August 16, 2021. https://sma.org/post-viral-syndrome

Angell M. Workers With Long Covid Need Support. Here’s How Employers Can Help. The Inc. Published May 2, 2022. https://www.inc.com/melissa-angell/long-covid-employee-support-resources-benefits.html

Arnold KD, Rohn KC. Internet-Enabled Experience Sampling. Advancing Educational Research With Emerging Technology. Published online 2020:124-151. doi:10.4018/978-1-7998-1173-2.ch007

Barber C. The Problem of “Long Haul” COVID. The Scientific American. Published December 29, 2020. https://www.scientificamerican.com/article/the-problem-of-long-haul-covid

Basu T. Covid-19 “Long Haulers” are Organizing online to Study Themselves. MIT Technology Review. Published August 12, 2020. https://www.technologyreview.com/2020/08/12/1006602/covid-19-long-haulers-are-organizing-online-to-study-themselves

Beckett RD. National Institutes of Health. Encyclopedia of Toxicology. Published 2014:458-459. doi:10.1016/b978-0-12-386454-3.00342-0

Churgay CA, Smith M, Cain J. A Practical Guide to Physician Disability Insurance. Family Practice Management. 2021;28(5):10-16.

Coforma, LLC. Health+ Lyme Disease Human-Centered Design Report. (Department of Health and Human Services, ed.). Published 2021. https://www.hhs.gov/sites/default/files/healthplus-lyme-disease-hcd-report.pdf

CPT® Overview and Code Approval. American Medical Association. https://www.ama-assn.org/practice-management/cpt/cpt-overview-and-code-approval

Davids J. Meaningful Involvement of Patient Advocates (MIPA) in the RECOVER Initiative: Summary of Structural Proposal. Body Politic and Patient-Led Research Collaborative, ed. Published November 2021. https://docs.google.com/document/d/1OmF6PAUja_wW8skhyYOZbyDtnmyYxxqH5LUNfZQjy0o

Dictionary of Cancer Terms. National Cancer Institute. Published February 2, 2011. https://www.cancer.gov/publications/dictionaries/cancer-terms/def/department-of-health-and-human-services

Disability Insurance Claims and Benefits Information. Disabled World. Published January 1, 2014. https://www.disabled-world.com/disability/insurance

DuLong J. How long Covid concerns are ramping up progress on other chronic diseases. CNN. Published March 22, 2022. https://www.cnn.com/2022/03/22/health/long-covid-chronic-illness-autoimmune-wellness/index.html

Dysautonomia: Symptoms, types, and treatment. Medical News Today. https://www.medicalnewstoday.com/articles/76785#symptoms

“Ecosystem.” Merriam-Webster. https://www.merriam-webster.com/dictionary/ecosystem

Elfrink T. Texas Roadhouse CEO dies by suicide while battling “unbearable” post-covid-19 symptoms, family says. Washington Post. Published March 22, 2021. https://www.washingtonpost.com/nation/2021/03/22/texas-roadhouse-kent-taylor-suicide

Fawcett D. Denby Fawcett: Lingering Symptoms Compound The Tragedy Of COVID-19. Honolulu Civil Beat. Published March 9, 2021. https://www.civilbeat.org/2021/03/denby-fawcett-lingering-symptoms-compound-the-tragedy-of-covid-19

Hsu A. Millions of Americans have long COVID. Many of them are no longer working. National Public Radio. Published July 21, 2022. https://www.npr.org/2022/07/31/1114375163/long-covid-longhaulers-disability-labor-a

Jones C. Long Covid: “I have to choose between walking and talking.” BBC News. Published December 26, 2021. https://www.bbc.com/news/uk-england-beds-bucks-herts-59584146

Katella K. 13 Things To Know About Paxlovid, the Latest COVID-19 Pill. Yale Medicine. Published August 11, 2022. https://www.yalemedicine.org/news/13-things-to-know-paxlovid-covid-19