Taking Action:

Opportunities to Improve the Quality of Life and Care for People Impacted by Long COVID

A Framework for Addressing the Long COVID Experience

Through our research, we identified nine opportunity areas, each of which are explained in the following pages. Altogether, they influence four ecosystems—public, assistance, health care, and innovation—which influence a person with Long COVID’s experience either directly or indirectly.

Within each of these opportunity areas, we will share an insight, or brief takeaway from research, followed by additional related information. Then we share an opportunity statement, or defined area for problem solving, along with an emerging set of recommendations. These recommendations are intended to holistically support people with Long COVID by enlisting change from a range of audiences, including health care providers, assistance providers, educators, employers, researchers, advocacy organizations, and the general public. With the implementation of all of these recommendations, efforts should be made to direct resources towards

marginalized and historically-underserved areas and communities, including communities of color, LGBTQ+ individuals, disabled individuals, older adults, and those living in rural or tribal regions.

All recommendations were either suggested or inspired by our research participants. In some cases, the Coforma team refined suggestions in order to make them more concrete while still adhering to the general vision provided by the participant. For the complete list of recommended ideas organized by opportunity area, see Appendix 1, Full List of Recommendations.