Advocacy Led by People with Long COVID

Insight

Advocacy organizations led by and for people with Long COVID have mobilized to fill critical gaps since the beginning of the pandemic, and yet many are operating on volunteer hours and shoestring budgets.

• Advocacy efforts led by people with Long COVID have provided invaluable insights and information to researchers.
• Advocacy efforts led by people with Long COVID have also become a source of mutual assistance and community for many people impacted firsthand by Long COVID, providing everything from moral support to step-by-step assistance applying for disability insurance.
• Despite the numerous critical roles they play, these organizations have limited resources.