The Health+ Long COVID cycle was conducted through a series of connected phases. In each phase, we learned from and worked collaboratively with people with Long COVID, their caregivers, health care providers, advocates, and other subject-matter experts. For the complete methodology used to complete this cycle, refer to Appendix 3: Research and Design Process.
We worked closely with Long COVID advocacy organizations and other community-based organizations to recruit a diverse community of over 60 people to participate in this process.
Several of them joined us for a series of discovery workshops to help shape our key learning objectives. Others participated in remote interviews, recorded audio diaries, or wrote us virtual postcards to tell us about their experiences living with and seeking care for Long COVID.
We analyzed and synthesized our research, and data-driven findings were compiled into impact frameworks, treatment journey maps, and opportunity areas. These materials were reviewed by participants to confirm their accuracy and generate recommendations.
A Healthathon will bring together people with Long COVID, caregivers, health care providers, advocates, and other subject-matter experts, to create or elevate solutions that respond to the opportunity areas identified in this report. (At the time of this report’s publishing, the Healthathon has yet to take place.)