Contents

Executive Summary 7
Introduction 13
Defining Long COVID 18
Terms 20
Living with Long COVID:
Long COVID’s Impact 23
Seeking Solutions:
The Treatment Journey 29
Taking Action:
Improving the Quality of Life and Care 37
Conclusion 59
Appendices 61
Appendix 1: Full List of Recommendations 62
Appendix 2: Glossary 72
Appendix 3: Research and Design Process 76
Acknowledgments 83